This group is a huge help for someone just starting out on this journey of Diffused Intrinsic Pontine Glioma or DIPG as we call it in our childhood brain tumor community. My experience with Aimee as well as the others who have walked this path can offer new hope to new parents that unfortunately, are just starting this journey. http://groups.google.com/group/dipg2
Also try these other sites:
National Groups
